{"id":18406,"date":"2023-09-21T12:43:22","date_gmt":"2023-09-21T10:43:22","guid":{"rendered":"https:\/\/knetpartage.fr\/?p=18406"},"modified":"2023-10-02T15:23:00","modified_gmt":"2023-10-02T13:23:00","slug":"18406-2","status":"publish","type":"post","link":"https:\/\/knetpartage.fr\/18406-2\/","title":{"rendered":"K NET PARTAGE SOUTIENT JEREMY DE MONTIVILLIER 76"},"content":{"rendered":"
\"j\u00e9r\u00e9my\"

j\u00e9r\u00e9my<\/p><\/div>\n

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K Net Partage a remis un ch\u00e8que correspondant \u00e0 la valorisation de 500 000 canettes de boisons en m\u00e9tal.<\/p>\n

J\u00e9r\u00e9my est un petit gar\u00e7on de 11 ans\u00a0 qui aime jouer a Roblox sur sa tablette, l’astronomie , ses 2 chats et son lapin.<\/p>\n

Bref un enfant presque comme tout les autres, car il est atteint d’une maladie :\u00a0la myopathie de duchenne\u00a0<\/strong><\/p>\n

C’est une maladie neuromusculaire\u00a0 qui atteint ses muscles en les fragilisant de plus en plus, l’emp\u00eachant de courir, de monter les escaliers et progressivement de marcher …<\/p>\n

J\u00e9r\u00e9my a de plus en plus de mal \u00e0 se d\u00e9placer, rendant les chutes tr\u00e8s fr\u00e9quentes… Mais il garde le sourire malgr\u00e9 tout ,surtout depuis les essais d un fauteuil \u00e9lectrique verticalisateur qui lui a fait comprendre qu’il va pouvoir retrouver un peu plus d’ autonomie et de libert\u00e9.<\/p>\n

Toutefois, cette libert\u00e9 a un prix 37000 euros, le co\u00fbt de ce dispositif adapt\u00e9 qui, nous le savons maintenant, ne sera pas int\u00e9gralement pris en charge.<\/p>\n

Sans plus attendre, nous avons entrepris plusieurs actions pour trouver des financements.<\/p>\n

Un dossier est d\u00e9pos\u00e9 \u00e0 la maison d\u00e9partementale du handicap (MDPH) mais les temps d’instructions sont tr\u00e8s longs; La mutuelle (Pro BTP) devrait aussi participer mais nous nous attendons \u00e0 avoir un reste \u00e0 charge de 15 000 euros. Une somme colossale qui vient s’ajouter \u00e0 d’autres co\u00fbts tels que le v\u00e9hicule adapt\u00e9 pmr pour le transport, l’adaptation du logement, etc.<\/p>\n

Nous avons donc d\u00e9cid\u00e9 de faire appel \u00e0 la solidarit\u00e9 pour nous aider dans cette \u00e9preuve. Cette cagnotte nous aidera \u00e0 financer ces restes \u00e0 charge et \u00e0 redonner \u00e0 Jeremy cette libert\u00e9, ainsi que son merveilleux sourire .<\/p>\n

L’ensemble des fonds collect\u00e9s seront revers\u00e9s directement par la plateforme au fournisseur de fauteuil (Harmonie Medical Service). Si jamais nous venions \u00e0 d\u00e9passer l’objectif des 15000\u20ac, le surplus serait allou\u00e9 au financement des autres postes (un v\u00e9hicule adapt\u00e9 que nous devons acqu\u00e9rir pour transporter Jeremy et son fauteuil.)<\/p>\n

D’avance merci pour votre bienveillance, vos dons, quelque soit les montants, et vos partages. 🙏<\/strong><\/p>\n

Gwena\u00eblle (maman de Jeremy).<\/p>\n

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      K Net Partage a remis un ch\u00e8que correspondant \u00e0 la valorisation de 500 000 canettes de boisons en m\u00e9tal. J\u00e9r\u00e9my est un petit gar\u00e7on de 11 ans\u00a0 qui aime jouer a Roblox sur sa tablette, l’astronomie , ses 2 chats et son lapin. Bref un enfant presque comme tout les autres, car […]<\/p>\n","protected":false},"author":2,"featured_media":18804,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[44,45],"tags":[],"class_list":["post-18406","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-actualites-2023","category-resultats-2023"],"yoast_head":"\nK NET PARTAGE SOUTIENT JEREMY DE MONTIVILLIER 76 - KNETPARTAGE<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/knetpartage.fr\/18406-2\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"K NET PARTAGE SOUTIENT JEREMY DE MONTIVILLIER 76 - KNETPARTAGE\" \/>\n<meta property=\"og:description\" content=\"      K Net Partage a remis un ch\u00e8que correspondant \u00e0 la valorisation de 500 000 canettes de boisons en m\u00e9tal. 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